I’m so incredibly worried, overwhelmed and stressed out

We had a pretty nice evening, especially considering how stressful of a day it was.

Lizze is sick and not doing well. Her cough is bad and she’s in a lot of overall pain. She’s only been on antibiotics for a couple days, so she should be feeling better in the coming days.

Gavin is a hot mess. He’s all over the place and absolutely struggling with nearly all areas of his life. I’m extremely worried about this new-ish unknown blood disorder and we are waiting for the referral to Hematology.

Poor Gavin’s Schizophrenia is definitely worsening since the reduction of his meds but there’s no choices at this point.



Let’s not forget Elliott. Most of my morning was spent focusing on Elliott.

He was at the pediatrician because he keeps running fevers but is otherwise asymptomatic. It’s good that he’s not sick, and I’m going to assume the chest x-rays were clear because they never called.

It’s looking more and more like Elliott may have the same or similar fever disorder that Emmett does.

They present differently but that’s not a big surprise. The underlying commonality is that they run fevers for no reason. This has cost Elliott an entire week of school. Thankfully he’s been working on everything he missed but he still missed the days.

Thanks to the new attendance policy that the State of Ohio, in its infinite wisdom, has put into effect, we’re flirting with truancy. His missed days are all documented and aside from our vacation, they are considered excused absences, but they still count against him.

I don’t know what we’re going to do because Emmett’s been dealing with his fever disorder for most of his life and we still struggle with it.

Speaking of Emmett, he’s the only one actually doing well at the moment. He’s doing well physically, there are still emotional struggles.

Anyway, I’m so exhausted from this past week. My stress level is through the roof and I’m worried sick about my family.

I need things to slow down long enough for me to catch my breath. It won’t happen but I really can’t keep up this pace.

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