One of the things I try very hard to do with this blog, is be as honest and transparent as I can. There are always things that don’t get shared and while I understand the desire to know more, we still need some privacy.
This is why there are times when something I say or do seems really out of place and that’s because you’re probably lacking context that would make things easier to understand.
Having said that, it’s all about balance.
I try to always be positive but not at the expense of the truth. The truth is, sometimes there’s a silver lining and if you just take a second, you can find it. Other times the truth is that things just suck and there isn’t any amount of spin or positive thinking that will change that.
It’s always been important to me personally, that I deal with the reality of situation, rather than frame things in a way that makes people more comfortable reading about it.
You’re not alone! And yes, putting it out there DOES help other parents not feel guilty about havin… https://t.co/TU3asN6ogP
Being a parent of NT kids is hard enough without adding autism to the mix. I did it alone for a few years and I kept my sanity with the help of friends and family. I think the hardest part was admitting that I wasn’t a super woman and that I needed help. I don’t know why but people thought I was strong enough to get by without help. I also found that little escapes helped…..going to a movie or hanging out at Barnes and Noble for a couple of hours rejuvenated me. You are dealing with a lot and deserve a mental health break. Be good to yourself so you can be good to your kids
I’m a new follower, a parent of an adult son with autism, a speech language pathologist in early intervention, and way over 40! I’ve been where you are, plus I’ve had the extra guilt from others as well as my self that hey you’re a professional! You should know how to handle anything! Where’s your magic bullet? I don’t have one. There isn’t one (but you know that). Whenever I felt that way I took a long walk, did a search of funny jokes, indulged in something with a lot of chocolate, or just was good to myself in some way. BTW 40 is soooo young! :-}
I hope this helps to know you’re not alone. I’m turning 40 next month as well and not dealing too well with it either. Our eldest has autism and various health issues and it’s often very hard to see the future as positive. It helps to hear from other dads and I hope I can help you with this comment. God bless.
Have you talked to your Dr about going back on your meds?
I am not from US, know nothing about help available over there. Is it not possible to arrange carers to come in for couple of hours? Is state not helping with some sort of respite? I guess this is not much help, as you seem to be very knowledgeable and would have explored those possibilities if they would be available… Take care and we will be waiting for your next blog, called “What made my day” or “Things seem to fall in to places”!
Hi! I’m so sorry you feel like this… You are an awsome Dad and husband, as what i gather from the posts you always considerate how your wife feels, try to give her a brake and never judge her. You are really great guy, just challenged so much! Thank you for your blog, you put it on the paper how i feel. It’s hard to explane what it is so overwhelming about being Autism parent, but you did! You don’t seem to have resentment against other people, while i do. People i know are holidaying, shopping, planning an exciting future, how is this fair? While they are thanking for their blessings, i “embrace” challenges, because God loves me more… How do you manage not to be jelous and bitter?
Hang on Rob! When I was talking to a friend about a somewhat serious problem, she said, “Well, at least you have your loving husband and sons.” I know all of your family is either sick, disabled, or both, but it seems you all love each other (as much as each one is capable).
Have you tried a GoFundMe? Maybe you’ve done one before but maybe another?
Nobody should feel this much stress and pain. My heart breaks for you. I hope things get better x