Sometimes #Autism can be incredibly frustrating



The doctor stepped in and told Gavin that even if Lizze had said that, he was perfectly okay to take a Tums and still drink his Ensure.

I have no idea where he got this idea from but it wasn’t from Lizze and it certainly wasn’t from me.

He must have misunderstood something that was said and it turned into that. Gavin got really upset and began hitting himself. He would not let this go.

Update since writing: I double checked with Lizze about this and she has no idea what he’s talking about. The only thing she can think of is that she and I have both told him that sometimes, you can’t take Tums if you’re already on prescription antacid.

The doctor may have thought I was being abrupt with him but this would have continued to esculate if I didn’t shut him down. There’s no reasoning with him when these things happen. I had to simply tell him that it was a misunderstanding, we would talk to Mommy about it when we get home and that at this point in time, it’s over, done with and gone. He understands that to mean he’s to let it go.

He them talked about being allergic to milk because every once in awhile he gets a tummy ache from consuming milk. He specifically stated that it could be regular milk or Lactaid.

She was going to put him on something to help with lactose intolerance until I spoke up. I explained that he drinks milk every single day and only on the rarest of occasions does he get a tummy ache as a result. Gavin made it sound like he’s getting sick everytime he consumes milk and that’s simply not true. In fact, he’s only said something maybe three times that I can even think of.

He wouldn’t let this go either and all it did was create confusion. He became upset to the point of hitting himself.

It really is frustrating because I know when he’s going to sorta go off road and needs to be redirected, sometimes abruptly but it can look like I’m being harsh with him.

Gavin’s random and sometimes incoherent comments during his appointment served to only make things more complicated.

This is the kind of thing that is extremely frustrating in regards to being a Special Needs parent. No one ever thinks about stuff because all too often, we just don’t talk about it.

3 comments

    • CHILD EDU on November 15, 2018 at 9:30 pm

    Great post.

    • BeckyW on November 15, 2018 at 4:59 am

    Gavin looks mature which is very misleading. From what you describe he has the understanding of a small child. I guess the doctors will get used to it.

  1. I am *amazed* at all of the parents of special-needs children.

    Patience, devotion, sacrifice … Y’a… https://t.co/zLEHuuGsoF

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