Read more about the article This is a f*cking nightmare every week
Clozapine / Gavin / Medication Management / My thoughts

This is a f*cking nightmare every week

It's Sunday, and we still have not been able to get Gavin's Clozapine refill. He has his bloodwork done every Wednesday morning, but the pharmacy either doesn't check for the labs, or they aren't sent to them in the first place. We end up waiting and waiting for the refill to come in. I set everything up so that there's a few days of overlap, and we have a backup supply as well. Timing is of the essence with Clozapine because he can't ever miss more than two doses. Lizze called again today, and they should have it ready in the morning. We still have his backup supply, so he's not missed anything. That being said, it's incredibly frustrating. There's so much red tape surrounding Clozapine, and it's a nightmare…

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June 9, 2019
Read more about the article I’m fighting #Depression tonight
Confessions / Depression Management / My thoughts

I’m fighting #Depression tonight

We had a pretty good day. I didn't make it to the park to go walking, but it's okay because I needed to rest instead. I use Biostrap to track my vitals, and it tracks tons of valuable information. It also lets you know when you've recovered from the previous day's workout, and when you need to rest. Friday I had a great day, but after a night of terrible sleep Friday night, Saturday wasn't so great. Frankly, my sleep wasn't the best on Friday either, but overall, I was in a much better place both physically and emotionally. ☺ Anyway, the whole point is that I didn't mind taking the day off from walking. Lizze wasn't doing so well and wasn't able to keep up with the boys. It…

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June 9, 2019
Read more about the article I was completely unprepared my #Autistic son’s heartbreaking emotional reaction
Autism Parenting Heartbreak / Autism Parenting Insight / Elliott / Emmett John / Gavin / My thoughts

I was completely unprepared my #Autistic son’s heartbreaking emotional reaction

One of the biggest challenges my wife and I have faced as Autism parents is something that thankfully, doesn't present itself very often. When it does, however, it's very difficult to navigate. That challenge has to do with the death of a family member. Thankfully, that doesn't occur very often, but it's something that we all have to face throughout our lives. Before we get into our current situation, I want to provide a bit of background and context. We've lost two grandparents in the last eight months, and for the first time, we allowed the kids to participate in the process. We've always shielded them from these things because of their limited ability to cope with emotional situations. It doesn't get more emotional than the loss of a loved…

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June 8, 2019
Read more about the article Heartbreaking: We do what we must for those that we love
Autism Parenting Heartbreak / Gavin / My thoughts / Schizophrenia

Heartbreaking: We do what we must for those that we love

I'm way behind on this update, but life has been getting in the way of writing. That said, what better time than the present to get everyone caught up. This particular update is in regards to Gavin and Wednesday night therapy. I had mentioned that he was chomping at the bit to update us on the missions he's been on recently. I also said that my enthusiasm for those updates was a bit lacking because it's a lot to take in, and it's a reminder of just how much he struggles with reality. It's important to me that I be supportive of him, but at the same time, I can't feed into his delusions. It's a very blurry line on the best of days, and it's not easy at all…

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June 7, 2019
Read more about the article Review: Jiobit GPS tracking for autistic kids
Affiliate / My thoughts / Parenting Resources / Reviews

Review: Jiobit GPS tracking for autistic kids

I'm a huge technology junkie and love using it to improve the quality of my family's life. Sometimes, however, something comes to my attention that I want to bring to my readers ASAP because I believe it can have a direct impact on their lives or the lives of their loved ones, and Jiobit GPS tracking is one of those things. Why GPS Tracking Matters Most of us are familiar with the many safety-related reasons why someone might want their kids to carry a GPS tracker. Sometimes it's making sure they get where they're supposed to go, and other times, it's just a safety precaution. While everyone may have a different reason for wanting their child to have a GPS tracker, when it comes to Autism parenting, GPS tracking can…

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June 6, 2019
Read more about the article I managed to turn my day around
My thoughts

I managed to turn my day around

A bit of exercise and fresh air does the body good. Frankly, it does the mind and soul good as well. I was feeling depressed and emotionally drained today but was able to get out for my walk. I walked just over three miles and feel so much better. Exercise is such an important part of self-care. While it's obviously good for the physical body, it also helps to decompress and better manage the insane amounts of stress associated with Autism parenting. I'm so grateful that Lizze was feeling better after her nap, and I was able to go. All I have left to do is go to spend time with my Grandma. I'm going to bring some work in case she's sleeping. I can just get some things done…

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June 6, 2019
Read more about the article I’m emotionally drained today but trying to work through it
My thoughts

I’m emotionally drained today but trying to work through it

I feel really rundown today, but it's mostly emotional. Lizze isn't having a good day at all, but the boys are doing okay. Gavin's been in his room for most of the day but occasionally stops down to see if there's anything he can do to help. Lizze has been down for a little while, and I'm hoping I can go walking once she wakes up. I still need to go see my Grandma and continue working on some projects for work. With everything going on, I've gotten a bit behind. I'm trying very hard not to be overwhelmed, but that's not going so well. One of the big things I'm working on is in regards to location tracking for kids who wonder. I'm really excited to get this out…

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June 6, 2019
Read more about the article A quiet day sounds perfect
My thoughts

A quiet day sounds perfect

Good morning folks. We have absolutely nothing going on today. Well, Lizze has a 9 AM appointment, but that's about the extent of our outside obligations. I'm still going to go walking and will definitely visit my Grandma, but I'm okay with not having anywhere else to be today. I have a few writing deadlines I need to meet, as well as some laundry that needs to be done, but that's about it. A quiet day sounds perfect.

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June 6, 2019