We may have a very, very difficult decision to make today



In the morning, we have an emergency appointment with Dr. Reynolds, Gavin’s psychiatrist. This is an emergency appointment to decide on the future of his Schizophrenia management.

This is an enormous decision because it can potentially impact the rest of his life.

If we take Gavin off the Clozapine, he will never be able to go back on it again. It’s very important to understand that at this point in time, there isn’t another antipsychotic that he can safely take.

Taking him off the Clozapine could very well mean that we set Gavin up to be an unmedicated Schizophrenic for the rest of his life.



While we’re mauling that over, there’s another side to this coin.

If the Clozapine is what’s causing the issues with the cell lines in his blood, not taking him off the Clozapine to potentially result in a very serious, life threatening condition in which his body simply will not be able to fight anything off.



I feel like in just about every way imaginable, we’re fucked. No matter what we decide, Gavin pays a very high price.

While one is life threatening, the other impacts his quality of life.

I can sit here and say that this is a tough decision but the reality is, preserving his life is the priority, and if that means losing the Clozapine, so be it.

Part of me wishes Gavin had the cognitive ability to make this decision for himself. I don’t know what he would decide to do if given the choice, and while he’s not capable of making, or even understanding this type of decision, it very important to us that we want to do right by him.

Read This  We just left Urgent Care: Here's what's going on with Gavin

I wish for once, we could have a situation in which the decisions weren’t a matter of life or death. I can’t even begin to explain what this feels like. If your kids are healthy, never, ever take that for granted. You never know own when that good fortune could be taken away.

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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anathema sanchez
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anathema sanchez

Better ways to manage schizophrenia may appear in the future, but your boy has to be alive to see it. Weigh it like that.

I am just a person from the outside who happens across your blog occasionally and wished to offer insight into how I make decisions like that one. Keep the life going. Where there is life there is hope.

Rob Gorski
Admin

You are correct. The future is unknown and there is already a drug we can try if need be

BeckyW
Member
BeckyW

I know about the health thing. Henry seemed perfectly normal until he was almost 14. It was heartbreaking for him to lose his physical health. And yes, it is lost. So I hear you.

Rob Gorski
Admin

Thank you Becky

anathema sanchez
Guest
anathema sanchez

Better ways to manage schizophrenia may appear in the future, but your boy has to be alive to see it. Weigh it like that.

I am just a person from the outside who happens across your blog occasionally and wished to offer insight into how I make decisions like that one. Keep the life going. Where there is life there is hope.

Rob Gorski
Admin

You are correct. The future is unknown and there is already a drug we can try if need be

BeckyW
Member
BeckyW

I know about the health thing. Henry seemed perfectly normal until he was almost 14. It was heartbreaking for him to lose his physical health. And yes, it is lost. So I hear you.

Rob Gorski
Admin

Thank you Becky