If my sensory sensitive kids with #Autism can wear a mask, WTF is your excuse?



In all seriousness, this is whole lockdown/quarantine thing is dragging on and on and on.

I have zero time to myself and my room has become a free for all. The kids are constantly coming in and out, all throughout the day. I still can’t get Emmett in his own bed at night and we’re approaching the one year mark since their mom left.

These guys are still hurt, sad, scared and very, very angry. The pandemic has made everything so much harder for them. For one thing, they simply have too much time to think about everything and that’s not good. It’s impossible to keep them distracted all the time and even harder to try and find time to work.

As for me personally, I was still getting used to being on my own when we went on lockdown. While the kids didn’t see their mom nearly enough before lockdown, they’ve only had one, two day visit in the last 100+ days. That’s by design right now because we both agree it’s the safest approach. It’s really hard on all of them, including Lizze. I know she is where she is because she chose this new life for herself. It’s what she wanted and this is just one of the many unforeseeable consequences of her new found freedom, but I’m not an asshole. I hate that they aren’t able to see each other. I want nothing more then for the kids to have a happy, healthy and fulfilling relationship with their mom. I want the same for her. She’s irreplaceable and they need each other.

We are tentatively looking at another visit in early July. Lizze and her household will do a 14 day quarantine later this month and assuming it goes well, the boys will have another short visit. I know how important this is to Lizze and the boys, so we’re not taking any chances on our end either. The quarantine works both ways. If we break quarantine, we have to wait 14 additional days before the kids can go over, so this is being taken very seriously.

Even when the kids go and visit, I’m still maintaining quarantine on my own. That means I get to sit at home alone and while it’s quiet, I can’t help but be reminded of how very much alone I am. It’s a difficult adjustment after 20 years.

It’s all a bit depressing, but I need to the time to myself, even if I don’t really want it. My kids also need a break from me as well. I’m sure I drive them crazy to.

0 0 vote
Article Rating
Subscribe
Notify of
guest

This site uses Akismet to reduce spam. Learn how your comment data is processed.

4 Comments
most voted
newest oldest
Inline Feedbacks
View all comments
Kc

You’re absolutely able to do what you feel is right for your children and family. However, I find it crazy that nobody is fighting for the rights of us who don’t feel that our children with autism should be forced to comply. I refuse to do this to my 2 sons, and I feel that’s ok, with their diagnosed disability. I saw on another article in this that they said all it takes is mask sensitizing and therapy. What?!! Like that’s ALL it takes. I’m not going to ever subject my kids to that. I have other priorities for them in therapy. Like developing independent social skills that will enable them to be successful in their life. This is not something I should have to be forced to do TO them. Again- you are doing what you feel is right for your family, I’m just expressing my disappointment that the rights of anyone with autism are being ignored and taken away, and that it is quietly being allowed.

Curtis G.

My wife, my eldest son with autism and myself went to the park for the first time to get out of the house and get some exercise. I was shocked to see with all the people in the park(adults and young children) no one was wearing masks except only two other people in the entire park. Yesterday we went to a discount grocery store to shop. Most of the shoppers wore masks but one man, not wearing a mask, who I don’t know from Adam, came up to me and tried to convince me that I no longer needed to wear a mask. He made up a story saying our state government in Pa. had just said today that masks were not needed. He wasn’t a nasty or obnoxious guy but I was not interested in getting into a debate with a stranger regarding wearing masks. I told him that it was my choice to protect myself and my family and we all chose to wear masks and turned and walked away from him. I am totally astounded how brain dead the “non maskers” are and cannot understand that it’s not just them and they are a danger to other people if they are positive infected but don’t know it. I don’t know what has happened to people today. I appears that good common sense is now becoming a rare commodity and the need to be able to go to the beach, sporting events or any group activity or have fun is more important than saving lives. This bothers me to no end, since my autistic son has various medical issues as well.

Ami Hart

Im an autistic adult and I barely can wear masks. It physically hurts and after about 5 mins I can barely stand it anymore so I just don’t go nowhere and try to stay away from crowds but I stayed away from ppl even if there wasn’t covid 19 not a ppl person. So covid hasn’t changed my life that much. I love the social distancing so ppl stay away from me and arnt that close anymore. My 4 year old is autistic and won’t keep a mask on. Me and him have asthma. My bf has asthma and still constantly talks to ppl and it drives me crazy. At least now he’s kinda doing it from a distance. He’s always been a social butterfly and it’s drove me nuts even before covid lol

4
0
Would love your thoughts, please comment.x
()
x
%d bloggers like this: