My Real-life Struggles: I don’t know what I’m going to do or how I’m going to pull this off

As for the steroids, the likelihood of this working is pretty remote and the side effects can be unpleasant. It’s not the best idea and therefore, not really a reasonable option.

After weighing the options and discussing it with her doctor, the headache infusion is the best option. It’s very likely to at least reduce her pain and it could even break the migraine altogether. She’s had this migraine every minute of every day for at least the last six or seven years. We have to go with whatever is most likely to help and that’s the headache infusion.

Lizze was originally scheduled for today, Monday, Tuesday and Wednesday of next week. We would have to be there very early and the infusion would take about six hours each day. That’s a total of at least twenty-four hours of infusion time.

We are not in a good place financially and frankly, we’re getting buried alive at the moment. It’s temporary and should improve but for right now, things are bad.



The original infusion schedule was tossed because insurance hadn’t approved the proceedure yet and at the time of writing, we still haven’t heard back.

The reality is that it will most likely be covered and we’ll probably hear back early next week. That’s a good thing.

Unfortunately, the logistics are going to be difficult, if not impossible. Putting aside everything the kids need, like rides to and from school for those four days, there are other issues as well…

Our car is literally falling apart and I have serious concerns as to whether or not it would even make it through four trips back and forth. I say four round trips because that assumes I sit in the waiting room the whole time. If I have to mange things with the kids, I may have to make two trips a day. As it is, we avoid making longer trips in the car because it’s long since past its expiration point.

Assuming the car would safely make the trips, there’s fuel costs, parking, probably food and there’s bound to be unforeseeable expenses. Parking alone will be at least $50. I priced it while we were there yesterday. These are serious financial obstacles for us.

We’re already in a bad place due to the time of year and business being slow. I wasn’t planning on having to make four round trips to the Cleveland Clinic, possibly more, but that doesn’t matter because she desperately needs this and I simply need to make it happen.

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  


  • So sorry to hear of your loss prayers and positive thoughts for you and family.

  • BeckyW says:

    Very sad. You all will get through your grandfather’s death, then you can figure out how to help Lizze.

  • BeckyW says:

    PS–a regular TENS unit might help Lizze, but it doesn’t really work like Cefaly. And it doesn’t break the migraines and sometimes makes things worse. The only reason to try would be cost…regular TENS units are cheap, less than $40 (if you don’t go through doctor). It does sound like you all have a good idea what is the most useful and doable.

    • Facebook Profile photo Rob Gorski says:

      Thanks Becky, I actually have a few TENS units. Companies were just sending them to me for awhile. I was giving them to people who needed them. They are surprisingly cheap, I had assumed they would be really expensive. They’re about the size of a deck of cards and work quite well.. ☺

  • Kendra Pearson says:

    Please email me at kendra.pearson1987@gmail.com Rob. I have a Cefaly unit that was prescribed to me months ago that made my migraines worse that I will send you free!